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100 Women With Endometriosis Reveal How They Really Found Relief

Endometriosis affects 176 million women worldwide, though there is still a lot of misinformation about the disease, its symptoms and how to treat it. 

The symptom that people with endometriosis report the most is invariably pain, though the type of pain — and its location — varies. The severity and type of symptoms depend on a number of variables, including where endometriosis is located. For instance, many who have endometriosis on the recto-uterine pouch report IBS-like symptoms. Those with endometrial cysts may experience urinary frequency caused by increased pressure on the bladder. Endometriosis is mainly found in the pelvis, though it can also affect other areas of the body, including the diaphragm. It can reduce fertility in some women. This debilitating disease also has high comorbidity with a number of other conditions. 

With all this in mind, the treatment for endometriosis is not one-size-fits-all. While many people report long-term improvements after surgery, others notice relief with hormonal treatments and dietary changes. 

SheKnows asked 100 women what best helps alleviate their symptoms. Respondents ranged in age from 17 to 51, and 33 was the average age. There are obvious limitations, which here are the relatively small study size and the absence of full medical histories. 

Some of those we asked were able to report long-term benefits of certain medications, dietary changes or procedures, while others were fresh out of surgery. And many didn’t have access to certain treatments. A resounding message that came from many of the women with whom we spoke was this: Everybody is different.

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