Every Single Way Migraine Has Impacted My Life

Mar 20, 2018 at 11:30 a.m. ET
Image: Getty Images

Having a migraine attack is terrible. For everyone who has never experienced one, think of the worst headache you’ve ever had. Now multiply that by like, 100. Then, sprinkle in some nausea, neck stiffness, body numbness, fatigue or visual disturbances. Ouch. While most people think of migraine (yes, you read that right — singular) as just a headache, it’s actually a neurological disease that affects the biology of your brain. It’s always there — even when the head pain stops.

But dealing with chronic migraine, meaning you have 15 or more headache days per month, can be completely debilitating — and it can impact your life in many ways. Besides the obvious head pain that ranges from “Ow! Someone is stabbing me repeatedly in the area behind my eyes!” to “GAH! I’m being bashed in the head with Thor’s hammer,” here are some other things someone with migraine may experience.

It is physically debilitating

Sure, “Can’t Feel My Face” is a song by The Weeknd, but it could just have easily been penned by me as an ode to my migraine symptoms. I know I’m in Migraine Land when my lips get numb and tingly and my left arm gets weak.

Some other unfortunate symptoms can include slurred speech, neck stiffness and fatigue. I also sometimes get what I call “lightning vision,” where everything looks buzzy and electric. Wonky vision would be a cool superpower (“Fear not, Gotham; Lightning Vision Girl is here!”), but as a symptom? It’s not so super. What’s also not super is how frequently I have to forgo my favorite weekday pastime: hitting the gym. After all, I can barely lift a finger when a migraine attack hits, let alone a barbell.

It ruins food

In my quest to be migraine-free (or at least migraine-fewer), I’ve tried every healthy eating diet the internet can recommend. The result is that I’ve cut basically every fun and delicious food group out of my life. Gluten? Gone. Dairy? Done. Caffeine? Cut! It! Out! Trust me, you do not want to go to a restaurant with me; watching me do verbal gymnastics to order per my eating specifications is painful. And honestly, do you ever really know what’s actually in your restaurant food? The answer is a big, fat, whopping NO, so most of the time, I opt to not even go out to eat in the first place. On the flip side, though, when I am in the midst of a migraine attack, I’m so nauseous that I can’t eat anything at all, so it basically solves the “What am I having for dinner?” conundrum for me.

It drains your bank account

Being chronically ill is not cheap. Neurologist and general practitioner and acupuncturist, oh my! Luckily, I have good health insurance, but still, copays can add up. And so can the cost of organic meat and produce, gluten- and dairy-free everything, supplements and herbal remedies and oh-so-many massages. Paycheck, meet migraine expenses.

It forces you to call in sick, constantly

And speaking of my paycheck, every time I send a sick-day email explaining that I can’t come to work because of my migraine, I envision my supervisor and coworkers gathering around the computer screen to mock my excuse. “She’s sick! Cough, cough!” And who can blame them? Last year, I used up all of my annual sick days in the first six months of the year. That's because working during a migraine attack isn’t just unbearable, it’s literally impossible. If I have a lightning vision or a splitting headache or debilitating fatigue, I can hardly lift my laptop, let alone drive my car into the office. Even if it’s not a full-blown migraine, I can make the trek to work, but I’m still not “all there."

It consumes your time

I get so tired of lying on my couch, addled with a splitting migraine attack and unable to do anything else except watch so-bad-it’s-good television. Because the biggest and most unquantifiable cost of my chronic migraine is my time. My going-out-with-friends time. My date-night time. My work-on-my-passion-project time. My snuggle-up-and-read-a-good-book time. Or even my I-just-want-to-watch-a-terrible-reality-show-without-a-head-pounding-migraine time. But the reality of my life with migraine is that I’m the friend who always bails. I’m the girlfriend who makes us order takeout instead of preparing the romantic dinner together like we’d planned. Migraine doesn’t define who I am, but it sure does dictate what I do.

For those living with migraine who feel like they are missing out on life moments, please know that you are not alone. Visit SpeakYourMigraine.com and check out the Migraine Impact Assessment tool, designed to help those living with migraine better communicate the impact of the disease with doctors, coworkers, family and friends.

This post was sponsored by Amgen and Novartis. USA-334-80037


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