Skip to main content Skip to header navigation
Jo Kaur profile image

Jo Kaur is a rare disease mom, a New York City-based civil rights attorney, and founder of Riaan Research Initiative, the first non-profit organization dedicated to accelerating and funding the development of treatments for Cockayne Syndrome, a fatal and rare neurodegenerative genetic disorder. To donate to Riaan Research Initiative, please visit riaanresearch.org/donate.