They also share important networking sites, where parents can connect with other parents facing similar challenges.
If you have or work with a child with special needs, the internet can be a scary place and one chock full of resources. The following are expert-endorsed sites for information, therapy tools and what all parents need: Understanding and support.
Says physical therapist Nikki Degner: “Children are like jigsaw puzzles. There are many pieces, and as you start to put the pieces together sometimes new things come up — which are just more pieces — and sometimes we have to tweak some things… to make the pieces fit. As we solve the puzzle, amazing progress will be made.”
Super Duper Publications was founded by a mom who created easy-to-use therapy materials while working as a speech-language pathologist.
How can social media help? As one mother of a child with Down syndrome posted recently on Facebook: “[There are ways to help] someone who is struggling to overcome a little bump in the long road to fully accepting their kid's diagnosis. There are always going to be bumps, from birth to adulthood, where you stop and say, “Why my kid?“
“You don't stand on the other side of the bump and hurl what you think is good advice to them; you stretch out your hand to help them get over the damn bump.”
While years ago, parents may have compiled binders of resources and information for their children, today's parents often create a special needs board on Pinterest. Most online resources allow readers to pin from their sites, or individuals may drag content to “Bookmarks” in their web browser, where “Pin It” will appear.
“Pinterest has been a wealth of info for me,“ says Jenn, who has two children, including a toddler with Ds. “I find the coolest stuff that we use therapeutically. [As a parent, you] always have to be willing to think outside the box and be resourceful.“
Inclusion for Children with Down syndrome has more than 1,200 members and provides information and support through dialogue from parents of children with Ds, care givers, practitioners and teachers.
Lennie Latham, ITFS, BA, has a regular go-to list of blogs. She says, “Occasionally, parents have something that they've found that works for their child that might work for other kids.”
Visit Pacific Pediatric Supply and search for “Weighted compression vest FF5330.“
Cari Fresoli, OTR/L, occupational therapist and co-owner of Lake Norman Children’s Therapy in Huntersville, North Carolina, says, “I love that it's a weighted compression vest and this price seems to be one of the best I've found. I have a family that has one from this company and they have been very happy with it!”
And you'll see personalized content just for you whenever you click the My Feed .
SheKnows is making some changes!