Meet Real Kids With SPD

Some studies estimate that Sensory Processing Disorder affects at least one in every 20 kids, and potentially as many as one in every six. Meet real kids and learn how SPD has affected their lives and their families.

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Jenna, 6

JennaDawn is a midwestern, forty-ish SAHM who was on her way to a PhD in Clinical Psychology when the universe decided it had other plans.

Jenna is a spunky 6-year-old who was born with a triple intestinal atresia, which means her small intestine wasn’t formed correctly and wasn’t fully connected. She had surgery when she was only two days old and ended up with only about half the normal length of small intestine, a diagnosis of Short Bowel Syndrome, and a g-tube for feeding. She spent three months in the NICU and developed chronic lung problems somewhere along the way, resulting in a diagnosis of Bronchiolitis obliterans.

After we noticed more and more significant delays in major motor milestones and she began complaining of foot and hip pain, we visited a long list of specialists who diagnosed her with Cerebral Palsy at age 4. She has additionally been diagnosed with Sensory Processing Disorder and Developmental Dyspraxia. Aside from all those medical and developmental labels, she is a little girl full of joy who loves to share it with the world. If she’s awake, she never stops talking, and she’s often too smart for her own good. She loves to boss anyone who will allow it and looks to be on track for ruling the world. We just hope to channel these skills for good and not evil.

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Comments on "Sensory Processing Disorder: Every family has a story"

Kathryn June 26, 2012 | 12:08 PM

I have SPD, certin textures mosly in clothing(i cant wear jeans or anything tight), crowded rooms and loud noises set me off.Also I love fidigiting with stuff and crave sentation in my mouth.I never go anywhere without my noise reduction headphones,fidgits and chewbles.

Tammy June 25, 2012 | 9:52 PM

Thank you all so very much for sharing, I sat here and read story after story and had to share with my husband, who after the 1st couple stories, said that's exactly like our son. We have been getting some behavioral help for awhile, but our pediatrician doesn't seem to think he needs OT, and it can be overwhelming at times. We just LOVE our boy who is kind, Loving, smart, a wonderful friend, but doesn't understand gentle, or personal space. God bless you all and thanks again.

Gabbie g June 25, 2012 | 5:17 PM

He reminds me of Allen, my 5 year old son, he also has SPD (moderate now) it was severe but therapies, lots of love & me putting myself in his place have helped him. Thank you sor sharing

Christina June 25, 2012 | 5:15 PM

I agree! It's so nice to know you're not alone when going through something with someone so close to your heart.

Laura June 25, 2012 | 11:03 AM

Great stories and great kids! SPD affects a lot of families and it's nice that it's becoming more of an "open" topic. It had a huge impact on my son's life and our family's life and I know some people often just thought we were "strange." Thanks to all of these parents for sharing their amazing kids and inspiring stories with us.

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