Meet Real Kids With SPD

Some studies estimate that Sensory Processing Disorder affects at least one in every 20 kids, and potentially as many as one in every six. Meet real kids and learn how SPD has affected their lives and their families.

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AJ on a bench

AJ, 9

Marcie Pickelsimer is currently a SAHM to two boys. AJ (9) was adopted from Russia in 2005 and Gus (4) was adopted from Guatemala in 2008.

AJ is labeled as a hyper- and hypo-sensitive child and this causes great confusion for everyone because one never knows what causes him to be overstimulated or understimulated. Because of this our family plans for everything. We bring headphones and his bear hug vest to outings, make sure he has his comfort items (fidgets), plan for soft, chewy, and crunchy foods at all meals, use weighted blankets at night, sign him up for heavy work activities like swimming and bowling, and make sure his IEP and teachers are on track all the time. SPD is all consuming for our family and our child and because of our son's multiple special needs it always will be all consuming. But, because of his needs I will be a better mom and better teacher.

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Comments on "Sensory Processing Disorder: Every family has a story"

Kathryn June 26, 2012 | 12:08 PM

I have SPD, certin textures mosly in clothing(i cant wear jeans or anything tight), crowded rooms and loud noises set me off.Also I love fidigiting with stuff and crave sentation in my mouth.I never go anywhere without my noise reduction headphones,fidgits and chewbles.

Tammy June 25, 2012 | 9:52 PM

Thank you all so very much for sharing, I sat here and read story after story and had to share with my husband, who after the 1st couple stories, said that's exactly like our son. We have been getting some behavioral help for awhile, but our pediatrician doesn't seem to think he needs OT, and it can be overwhelming at times. We just LOVE our boy who is kind, Loving, smart, a wonderful friend, but doesn't understand gentle, or personal space. God bless you all and thanks again.

Gabbie g June 25, 2012 | 5:17 PM

He reminds me of Allen, my 5 year old son, he also has SPD (moderate now) it was severe but therapies, lots of love & me putting myself in his place have helped him. Thank you sor sharing

Christina June 25, 2012 | 5:15 PM

I agree! It's so nice to know you're not alone when going through something with someone so close to your heart.

Laura June 25, 2012 | 11:03 AM

Great stories and great kids! SPD affects a lot of families and it's nice that it's becoming more of an "open" topic. It had a huge impact on my son's life and our family's life and I know some people often just thought we were "strange." Thanks to all of these parents for sharing their amazing kids and inspiring stories with us.

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