Meet Real Kids With SPD

Some studies estimate that Sensory Processing Disorder affects at least one in every 20 kids, and potentially as many as one in every six. Meet real kids and learn how SPD has affected their lives and their families.

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Kevin on a bike

Kevin, 16

Karen blogs at Notes from the Cookie Jar.

He twirled and twirled until in exasperation I grabbed his shoulders to make him stop. "Kevin," I demanded, "What's wrong with you? Why can't you just stop it?" His blue eyes looked at me carefully as he brushed my hands away. "That," he pointed to the freezer case, "is humming. People are talking. The loudspeaker is playing music. These lights hurt my eyes. It's all just too much. Can't we leave?" What I had be researching for the previous few months finally dawned on me, and right then and there, we left the shopping cart behind and went home. Suddenly, everything made sense. How Kevin couldn't stand crowds, being cold, or the movie theater. He hated birthday parties and all their loud, unpredictable behavior. All the behavior that had completely puzzled us for nine years suddenly made sense, and we began to realize that none of it was Kevin's fault.

Two years later he was diagnosed with dyspraxia, a motor coordination disorder that often also comes with sensory integration difficulties. All that time when we weathered criticism from teachers, family, and perfect strangers that our bad parenting was to blame, Kevin had a real, definable disorder that could be managed. Eventually he began to find his own way to cope with the sensory stimuli that overwhelmed him, and today you would never know. Although, he has yet to set foot inside a movie theater again.

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Comments on "Sensory Processing Disorder: Every family has a story"

Kathryn June 26, 2012 | 12:08 PM

I have SPD, certin textures mosly in clothing(i cant wear jeans or anything tight), crowded rooms and loud noises set me off.Also I love fidigiting with stuff and crave sentation in my mouth.I never go anywhere without my noise reduction headphones,fidgits and chewbles.

Tammy June 25, 2012 | 9:52 PM

Thank you all so very much for sharing, I sat here and read story after story and had to share with my husband, who after the 1st couple stories, said that's exactly like our son. We have been getting some behavioral help for awhile, but our pediatrician doesn't seem to think he needs OT, and it can be overwhelming at times. We just LOVE our boy who is kind, Loving, smart, a wonderful friend, but doesn't understand gentle, or personal space. God bless you all and thanks again.

Gabbie g June 25, 2012 | 5:17 PM

He reminds me of Allen, my 5 year old son, he also has SPD (moderate now) it was severe but therapies, lots of love & me putting myself in his place have helped him. Thank you sor sharing

Christina June 25, 2012 | 5:15 PM

I agree! It's so nice to know you're not alone when going through something with someone so close to your heart.

Laura June 25, 2012 | 11:03 AM

Great stories and great kids! SPD affects a lot of families and it's nice that it's becoming more of an "open" topic. It had a huge impact on my son's life and our family's life and I know some people often just thought we were "strange." Thanks to all of these parents for sharing their amazing kids and inspiring stories with us.

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