We live in Virginia with our four children. Rachel and our three boys are all affected with a very rare form of ichthyosis called ichthyosis-en-confetti. As parents of affected children, caring for ichthyosis is very much on our minds every day, and we hope that through our blog we will be able to share our trials and experiences with dealing with ichthyosis in the many ways it affects our lives.
Rachel is a lawyer and grew up in a family full of doctors and nurses. Jennifer taught anatomy and physiology to nursing students at a community college, and has also drawn hazardous-duty pay teaching high school earth science and biology in an inner-city school. Both of us have experience explaining technical, scientific issues in everyday language, and we hope our blog will be able to collect and synthesize some of what’s out there.